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THANK YOU!

I can't believe we did it!!! We raised $27,555 to start the Pryce Pilot Study at Johns Hopkins Huntington's Disease Center. This study...

2020 in HD

I was asked to join the advisory board for the Hopkins Huntington’s Disease Center! And my big sister Kim was asked to be the chair. In...

Fundraising Update

I’m now 4 years into knowing my positive Huntington’s Disease status (#LetsTalkAboutHD). I’m 3 years into fundraising for the HDSA, and...

#LetsTalkAboutHD

On the last day of Huntington’s Disease Awareness Month, I want to share a story about finding out about HD, but I don’t really remember...

Breakthrough drug and research trials

If you ever wonder if your donations make any difference, I can assure you that this one will. On June 2nd, I will be walking to raise...

Family History

The HDSA tells me that May is Huntington's Disease Awareness month. I had no idea this was a thing, but they don't have an ice bucket...

Clinical Trial

I participated in my first Huntington's Disease research trial yesterday and today at Johns Hopkins. I am happy to report that they got...

What your donation means.

It’s been over two years since I tested positive for Huntington’s Disease, and I worry that every time I can’t find my keys, lose my...

Testing Positive

A year and a half ago, I found out that I carry the gene for Huntington’s disease. This gene was passed to me from my dad, who died from...