I can't believe we did it!!! We raised $27,555 to start the Pryce Pilot Study at Johns Hopkins Huntington's Disease Center. This study...

I was asked to join the advisory board for the Hopkins Huntington’s Disease Center! And my big sister Kim was asked to be the chair. In...

Here is a link to the interview that Kim and I did with Johns Hopkins Medicine about our family story, which led to us speaking at the...

What's more terrifying than being tested for Huntington's Disease? Speaking about it in public. My sister Kim and I shared our family...

I’m now 4 years into knowing my positive Huntington’s Disease status (#LetsTalkAboutHD). I’m 3 years into fundraising for the HDSA, and...

On the last day of Huntington’s Disease Awareness Month, I want to share a story about finding out about HD, but I don’t really remember...

If you ever wonder if your donations make any difference, I can assure you that this one will. On June 2nd, I will be walking to raise...

The HDSA tells me that May is Huntington's Disease Awareness month. I had no idea this was a thing, but they don't have an ice bucket...

I participated in my first Huntington's Disease research trial yesterday and today at Johns Hopkins. I am happy to report that they got...

It’s been over two years since I tested positive for Huntington’s Disease, and I worry that every time I can’t find my keys, lose my...

A year and a half ago, I found out that I carry the gene for Huntington’s disease. This gene was passed to me from my dad, who died from...